We created the Health Data Ethics Map as a prototype that visualizes the complexity of inter-connected health data responsibilities and rights. The map is based upon the Swiss Personalized Health Network's"Ethical Framework for Responsible Data Processing in Personalized Health Research."
A tool to explore health data ethics responsibilities and rights.
To visualize, as a system of inter-connected components, ethical guidelines for responsible usage of personal data and samples in health research.
Based upon the Swiss Personalized Health Network's"Ethical Framework for Responsible Data Processing in Personalized Health Research."
Elements inductively deduced using a qualitative content analysis process.
Positions of elements determined through a process of concept mapping using results from coding.