Navigating Health Data Ethics

Navigating Health Data Ethics

 
Personal DataStandardFormatHealth-related DataSecurityEnrolmentScientificResearchAutonomyPrioritiastionGenetic DataSocietySharingTrans-parencyProtectionPrivacyTimelinessWithdrawalGover- nanceBiobankThird PartiesMonitor &EvaluateConsentNon- geneticDataConfiden-tialitySamplesEthicsReview Cmte.IdentifyingResultsResearchInstitutionAttributionDocumen-tationAnonymisedNo ProfitCollectionUsageFurther UsesDistributionStorageCorrectionAutho- risationData Coord.CentreSpecificConsentDestructionCodedAccoun-tabilityRemovalGeneralConsentLawCodes ofConductResearchParticipantHuman RightsResearchersProcessingNo ExclusivityQualityStandards
Ethical Principles
Respect of Persons
Data Fairness
Privacy
Accountability
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Health Data Ethics Map

Visualisation project by the Health Ethics & Policy Lab, 2021